Please help us find a cure! We are in the final year of our groundbreaking research study on Progressive Supranuclear Palsy. We are below our recruitment goal of 500 participants and need YOUR help to keep this research study going. We must increase our enrollment in 2011 - 2012.
We all know how devastating PSP is to those directly affected either as a patient or loved one. Please help us spread the word so that we can better understand this disease and work towards better treatments, and an eventual cure.
If you or someone you know has PSP and would be interested in joining our study, please contact us via phone at 1-866-PSP-0448 or via email at
Please let us know if you have problems traveling to one of our screening sites. We may be able to assist with some of your transportation needs.
As of November 2011: We have enrolled nearly 300 participants to date, but we still have a far way to go! If you are interested in joining our study, please contact us.
There are currently two clinical trials for PSP treatment being conducted at several locations across the country. Participants in these studies are encouraged to also enroll in this study.
The University of Louisville, in coordination with the National Institute of Health, is studying Genetic and Environmental Risk Factors associated with Progressive Supranuclear Palsy, more commonly called PSP.
There is little known about the causes of this neurodegenerative disorder. We will be studying 500 people who have PSP and collecting data to better understand this disorder.
This study involves very little of your time and does not cost you anything if you qualify.
Do I qualify for the Study?
If you have been diagnosed with PSP and meet the following criteria, you qualify for the study.
You are 40 years of age or older
You are able to participate in a telephone interview
You have no other Neurological Disorders
If you meet the above criteria, we would love for you to be part of this exciting study!
What does the study involve?
You will be asked to complete the following procedures:
An evaluation by a Movement Disorder Specialist to confirm the diagnosis of PSP
Blood drawn for genetic studies
Identify 2 people who want to serve as healthy controls in this study. Ideally, one will be a spouse or caregiver and the other will be an age and gender matched, non-blood relative, such as an in-law.
Take part in a telephone survey in which a series of questions asking about environmental exposures, such as those from jobs and hobbies you have had throughout your life.
If you have any questions please feel free to ask your neurologist or call us at: 1-866-PSP-0448 to be referred to the screening site of your choice.
This Study is being funded by the National Institute of Health and with the following Specialists & Sites:
On November 6, 2010, a meeting of all of the principle investigators and scientists involved in this study was held in Louisville, KY. The participants discussed recruitment strategies, reviewed preliminary data and prepared for upcoming analysis of data. We are still actively recruiting participants in the study and will be doing so for the foreseeable future. If you or someone you know is interested in being a part of our study, please contact us.
Please note: after contacting the main study site about enrolling in the study (866)-PSP-0448, your contact information will be forwarded to the screening site of your choice. You will be contacted by your chosen screening site within 2-4 weeks to schedule an appointment. If you have any questions about the study, please contact the main study site (866)-PSP-0448 or any of the screening sites, at any time.
